A complex and rare congenital heart defect
Marc has hypoplastic left heart syndrome. This illness is a rare congenital heart defect with no known cause that occurs during fetal development when the left side of the heart does not develop normally. The heart’s left side of babies with this condition is not strong enough to send blood to the body, so the right side takes over and maintains both pulmonary and body circulation. This overload of work can lead, over time, to heart failure. Today, doctors diagnose most cases of this heart disease during pregnancy. For babies like Marc, the best option is to keep the two parts of the heart connected by maintaining one of the two connections that the babies naturally have.
In April, we spoke with Marc’s parents Lola Anton and Chema Cabanillas. They shared with us how Marc’s life has been during the last year, the moment of diagnosis during pregnancy and the multiple surgeries and challenges they’ve faced.
Below is a piece of the interview. A few days after our conversation, the entire family gathered to celebrate Marc’s first birthday.